by SparkleFly12 » Mon Nov 02, 2020 1:35 pm
20.5 months
PAWS still comes in waves, lasting 3-4 days; every 7-8 days. Now the symptoms are insomnia/anxiety, low libido, mild vivid dreams, and swollen lymph node. The great thing is that on good days, I get 2-3 days where I am almost completely symptom free!
I dont want to jinx it, but my headache is gone now. Its awesome. Ive lived with it for so long; I cant believe its gone. Even on the bad days.
But the weird thing is that some symptoms got worse. Its like my brain crossed some threshold a couple weeks ago and while I feel a lot better overall, a couple symptoms regressed (on the bad days).
These are insomnia and vivid dreams. For insomnia, I was previously getting 6 hours of sleep almost every night - but would wake up extremely drained every morning; like the sleep was very bad. I felt worse than I would if I actually slept 6 normal hours. Now, on the bad days, I wake up many times through the night and often only get 4-5hrs. But, it feels like I got 4-5 hours. So even though the insomnia is worse, I still feel like the sleep is better. Vivid dreams have also made a small comeback; on bad days Ill have some very exciting dreams that are very similar to those I had in the first few months of PAWS - but they are much milder. They dont bother me much; although they can be disturbing/emotional. But its more just strange that the trajectory of my symptoms changed this late into the game.
Cheers all!