I notice I have triggers for my depression when it comes to PAWS and they've been bothering me today. I just posted that I deal with fuzzy vision. I also deal with fatigue and insomnia and the terrible anxiety even at work. I get depressed because I'll never go as far as I used to think and I've been thinking about this in terms of grief and grieving.
Having PAWS is like having a chemical stroke. The brain changes and takes years to recover. I looked up "grief and strokes" since PAWS is not a well known topic, but I believe the two conditions have their similarities. The brain changes when you go thru PAWs and same with the stroke. In the article I read I read about going through the stages of grief. In the first stage, denial, the person is trying to get their old brain and body back working hard to meet every goal. Eventually the other stages pass too, bargaining, anger, "why did this happen to me", and depression, the feeling I feel with a lot..."is it worth it to keep going?" I have been in this battle for a long time and I honestly have no idea what the future holds. Sometimes I want to just give up and work at McDonalds or something, sometimes I have darker thoughts but I never want to act on them.
I notice certain triggers that make me feel depressed. Whenever I see people using substances, like smoking a cigarette, drinking wine. I saw these kids chugging mountain dew in the library this morning and I thought, if I did that, my anxiety would be so bad in would feel like I was having a heart attack, and my vision would be hellish, and I would feel like crap for days. I also really miss having a cigarette. Having a coke, or a glass of wine. I miss being able to stay up late and not have to worry about dealing with anxiety attacks the next day. Now those things are completely off limits or I suffer.
I also notice that when I see someone doing what I like to do, ie, performing piano recitals (I'm a musician) to a big audience, I get jealous and depressed. I used to be able to do the same thing, now the stage fright gives me anxiety that impedes my performances. I have made strides in dealing with this and gave two major recitals this year but the anxiety was hard to deal with, yet I did it, I'm happy to say.
I miss the old self, and one strategy I try to do is to forget he ever existed, and to think that this is how it's always been. When I think of the good times before PAWS I just get insanely depressed sometimes so it's best I think not to remember them. I wish I could make the old days come back but I am aware there is n o t h i n g I can do to change the past. It is gone. I've lost my old brain and it's not coming back, and I'm doing my best to embrace the new self and deal with the triggers.
I am writing this to help myself, if you can relate at all, share your comments. If you think what I'm saying is whiney or obnoxious, sorry but it's just how I feel and what I deal with every day. This forum is really the only place I can vent these thoughts so feel free to add your own.